- Contact a Family
Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
(Rating: 0.00 Votes: 0) Rate It - Human Growth Foundation
Information about growth-related disorders through education, research, and advocacy. Member driven organization.
(Rating: 0.00 Votes: 0) Rate It - National Organization for Rare Disorders, Inc.
Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.
(Rating: 0.00 Votes: 0) Rate It - Nomid /Cinca
Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by patients, parents and friends for their counterparts worldwide. Email support group at eGroups.
(Rating: 0.00 Votes: 0) Rate It - Office of Rare Diseases
Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
(Rating: 0.00 Votes: 0) Rate It - Tetrahydrobiopterin Home Page
Information on structure, biosynthesis and pathophysiology of BH4 - database of BH4 deficiencies - database of mutations - screening for BH4 deficiency. These are just a few of the topics discussed.
(Rating: 0.00 Votes: 0) Rate It |
