- Friends of Alexander Deihl
A non-profit organization established to help children and their families who have been affected by a crippling disorder or are terminally ill. About Menkes' Syndrome with support.
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An information sheet this disease including treatment and prognosis.
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A look at the aetiology, pathology and the symptoms of this disease.
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At eGroups: Open to anyone interested in making friends, sharing information and providing support for persons affected by "Menkes Kinky Hair Syndrome"
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A definition and a look at the epidemiology, pathophysiology, clinical manifestations, diagnosis, treatment, prognosis and reference.
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In depth look at this disease including the following, description, clinical features, biochemical and other features, molecular genetics, diagnosis and clinical management.
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An in depth look at this syndrome starting with alternate names. Clinical features, diagnosis and clinical management are a few to the topics covered.
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