- Barth Syndrome Family Network
Offers details about the disease, message board, research sites, events and private chats. Numerous links to other resources.
(Rating: 0.00 Votes: 0) Rate It - Barth Syndrome Foundation
Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.
(Rating: 10.00 Votes: 4) Rate It |
